Sorry it has taken me so long to post again about the updates in our life. I am quickly realizing that going from 2 to 3 children is a blessing but a big change. My free time felt like it went from some to none :) Just keeping up with life and taking care of our 3 boys keeps me busy. And I would honestly say some of the "life part" is behind in my book, but maybe I just need to adjust my thinking.
Arm...
Well I had surgery on December 20th. Surgery went well and I was in a big splint/cast that I could not take off or get wet for a week. Then I got put in a smaller splint that I can take on and off just to shower and do my stretches each day. I got 18 staples removed on Wednesday. That experience was not pleasant at all and happened with lots of tears from me. The status now is for me to continue doing my stretches several times a day and I start OT next week. I have to go twice a week for several weeks and hopefully can move it down to once a week after that. I do not follow back up with the surgeon until the end of January! So hopefully things keep progressing well. I can use my left hand for some things but I am not going to lie, not being able to bend my arm at all is frustrating. I am having to do everything with my right hand and not lift much of anything with my left arm at all. Anything that involves your tricep muscle is suppose to be forbidden. This is very hard if you stop and think of how many times a day you use that muscle! I definitely won't take it for granted again!
Colton...
Colton is doing well! He is growing like a weed and is already 5 weeks old. We have progressed to a pretty good schedule already thanks to really trying to follow Baby Wise for the last few weeks. He is eating every 3-4 hours and the last two nights is going about 6 hours at night between a feeding (we will see if that continues). He does have a pretty fussy time that happens each evening which can be tiring for our family when we are trying to take care of and hang out with brayden and teagan as well. He actually started on some Zantac yesterday because the pediatrician thinks he may have some reflux issues so we will see if that helps. If not he is just having a fussy time each day and nothing we can really do but try to have patience until he outgrows it.
Teagan and Brayden are doing great with him. They absolutely love their baby brother and honestly like to be around him too much at times.
UNC...
We do have our UNC appointment scheduled for next week, January 11th at 12:45 pm. We will be meeting with Dr. Alysworth and Beth Hudson (genetic counselor) to start discussing our questions, where we go from here, and to do an evaluation of Colton. Honestly I am not sure what to expect but I am praying for some more clarity and to gain some wisdom. I am hoping some of our unknowns will be answered. Please be in prayer for us as we attend that appointment. I know it will bring a lot of emotions that day. I pray God comforts us and we feel his presence as we discuss our son and his future.
I hope to soon get into a good routine to start updating our blog more often. First - we need to update the look of this blog. Joye Mullis that is where you come in. Let's meet for lessons!!
Friday, January 6, 2012
Tuesday, December 20, 2011
Life Happens
Many of you got this in an email from us but just wanted to post it here to document it.
As many of you know with each pregnancy Daniel and I take a 50/50 chance that I will pass along my genetic disorder of Osteogenesis Imperfecta (OI) Type 4. And as all of you know, Brayden and Teagan did not inherit my gene and so they do not even have a chance to carry it on in our family. Well on Wednesday December 14th we got a phone call at 5:15 pm from UNC that Colton did in fact inherit my gene. So Colton does have OI - type 4. We were not expecting the results to come back so soon because with Brayden it took 6 weeks and Teagan about 3 1/2 weeks. This time we find out just shy of two weeks.
Daniel and I haven't told many people yet and even typing this email is hard for me. I think telling people makes it seem more real and makes me have to deal with it more, so I have just avoided it. We didn't even tell our families for 2 days just not knowing what to say to them and needing some time to process it ourselves before sharing with others. Of course we have a HUGE range of emotions we are going through and there has been a lot of tears. Emotions ranging from grief, anger, sadness, guilt, fear, and many more. Not all positive emotions for sure.
But we are telling all of you to ask you to just be praying with us and for our sweet Colton. There are still a lot of unknowns and that may be the hardest part. We don't have any answers or other specific things to tell you about it right now. All we have been told is that I have to call on Monday to schedule an appointment with a pediatric genetic counselor and we will go from there I guess.
Some specific prayer requests...
* Pray that we get in to see the pediatric genetic counselor sooner than later. I was told it can take months
* You can begin to pray that Daniel and I deal with all our emotions and not let them stay bottled up. And that we try to deal with them in a somewhat healthy way
* You can pray for Colton...that the OI would present itself in a minor way in his body and lifetime as it has for me. Yes I have broken several bones but overall have been able to live a pretty normal life but there are relatives I have that have the same type of OI that I have who have had A LOT more issues related to the OI and have not had such a mild case of it. To my understanding we will not know how it will affect him right away...
Also as many of you know I fell almost two months ago and hurt my left arm pretty badly. Well also last week, we found out I have to undergo outpatient surgery this Tuesday Dec. 20th. I found out recently from an MRI I have torn my tendon/tricep muscle area. I have broken this arm several times in the past, so hurting it again is just a frustrating thing for me having to deal with another OI related issue. So you could just be praying that my surgery goes well on Tuesday. :) WHAT a week huh?
This year has been an emotional one for our family...from the tornado, having to move out of our house for 6 weeks, falling/surgery, Colton's diagnosis. Really hoping 2012 comes with a lot less emotions :)
Thanks for living life with us!
As many of you know with each pregnancy Daniel and I take a 50/50 chance that I will pass along my genetic disorder of Osteogenesis Imperfecta (OI) Type 4. And as all of you know, Brayden and Teagan did not inherit my gene and so they do not even have a chance to carry it on in our family. Well on Wednesday December 14th we got a phone call at 5:15 pm from UNC that Colton did in fact inherit my gene. So Colton does have OI - type 4. We were not expecting the results to come back so soon because with Brayden it took 6 weeks and Teagan about 3 1/2 weeks. This time we find out just shy of two weeks.
Daniel and I haven't told many people yet and even typing this email is hard for me. I think telling people makes it seem more real and makes me have to deal with it more, so I have just avoided it. We didn't even tell our families for 2 days just not knowing what to say to them and needing some time to process it ourselves before sharing with others. Of course we have a HUGE range of emotions we are going through and there has been a lot of tears. Emotions ranging from grief, anger, sadness, guilt, fear, and many more. Not all positive emotions for sure.
But we are telling all of you to ask you to just be praying with us and for our sweet Colton. There are still a lot of unknowns and that may be the hardest part. We don't have any answers or other specific things to tell you about it right now. All we have been told is that I have to call on Monday to schedule an appointment with a pediatric genetic counselor and we will go from there I guess.
Some specific prayer requests...
* Pray that we get in to see the pediatric genetic counselor sooner than later. I was told it can take months
* You can begin to pray that Daniel and I deal with all our emotions and not let them stay bottled up. And that we try to deal with them in a somewhat healthy way
* You can pray for Colton...that the OI would present itself in a minor way in his body and lifetime as it has for me. Yes I have broken several bones but overall have been able to live a pretty normal life but there are relatives I have that have the same type of OI that I have who have had A LOT more issues related to the OI and have not had such a mild case of it. To my understanding we will not know how it will affect him right away...
Also as many of you know I fell almost two months ago and hurt my left arm pretty badly. Well also last week, we found out I have to undergo outpatient surgery this Tuesday Dec. 20th. I found out recently from an MRI I have torn my tendon/tricep muscle area. I have broken this arm several times in the past, so hurting it again is just a frustrating thing for me having to deal with another OI related issue. So you could just be praying that my surgery goes well on Tuesday. :) WHAT a week huh?
This year has been an emotional one for our family...from the tornado, having to move out of our house for 6 weeks, falling/surgery, Colton's diagnosis. Really hoping 2012 comes with a lot less emotions :)
Thanks for living life with us!
As many of you know with each pregnancy Daniel and I take a 50/50 chance that I will pass along my genetic disorder of Osteogenesis Imperfecta (OI) Type 4. And as all of you know, Brayden and Teagan did not inherit my gene and so they do not even have a chance to carry it on in our family. Well on Wednesday December 14th we got a phone call at 5:15 pm from UNC that Colton did in fact inherit my gene. So Colton does have OI - type 4. We were not expecting the results to come back so soon because with Brayden it took 6 weeks and Teagan about 3 1/2 weeks. This time we find out just shy of two weeks.
Daniel and I haven't told many people yet and even typing this email is hard for me. I think telling people makes it seem more real and makes me have to deal with it more, so I have just avoided it. We didn't even tell our families for 2 days just not knowing what to say to them and needing some time to process it ourselves before sharing with others. Of course we have a HUGE range of emotions we are going through and there has been a lot of tears. Emotions ranging from grief, anger, sadness, guilt, fear, and many more. Not all positive emotions for sure.
But we are telling all of you to ask you to just be praying with us and for our sweet Colton. There are still a lot of unknowns and that may be the hardest part. We don't have any answers or other specific things to tell you about it right now. All we have been told is that I have to call on Monday to schedule an appointment with a pediatric genetic counselor and we will go from there I guess.
Some specific prayer requests...
* Pray that we get in to see the pediatric genetic counselor sooner than later. I was told it can take months
* You can begin to pray that Daniel and I deal with all our emotions and not let them stay bottled up. And that we try to deal with them in a somewhat healthy way
* You can pray for Colton...that the OI would present itself in a minor way in his body and lifetime as it has for me. Yes I have broken several bones but overall have been able to live a pretty normal life but there are relatives I have that have the same type of OI that I have who have had A LOT more issues related to the OI and have not had such a mild case of it. To my understanding we will not know how it will affect him right away...
Also as many of you know I fell almost two months ago and hurt my left arm pretty badly. Well also last week, we found out I have to undergo outpatient surgery this Tuesday Dec. 20th. I found out recently from an MRI I have torn my tendon/tricep muscle area. I have broken this arm several times in the past, so hurting it again is just a frustrating thing for me having to deal with another OI related issue. So you could just be praying that my surgery goes well on Tuesday. :) WHAT a week huh?
This year has been an emotional one for our family...from the tornado, having to move out of our house for 6 weeks, falling/surgery, Colton's diagnosis. Really hoping 2012 comes with a lot less emotions :)
Thanks for living life with us!
Daniel and I haven't told many people yet and even typing this email is hard for me. I think telling people makes it seem more real and makes me have to deal with it more, so I have just avoided it. We didn't even tell our families for 2 days just not knowing what to say to them and needing some time to process it ourselves before sharing with others. Of course we have a HUGE range of emotions we are going through and there has been a lot of tears. Emotions ranging from grief, anger, sadness, guilt, fear, and many more. Not all positive emotions for sure.
But we are telling all of you to ask you to just be praying with us and for our sweet Colton. There are still a lot of unknowns and that may be the hardest part. We don't have any answers or other specific things to tell you about it right now. All we have been told is that I have to call on Monday to schedule an appointment with a pediatric genetic counselor and we will go from there I guess.
Some specific prayer requests...
* Pray that we get in to see the pediatric genetic counselor sooner than later. I was told it can take months
* You can begin to pray that Daniel and I deal with all our emotions and not let them stay bottled up. And that we try to deal with them in a somewhat healthy way
* You can pray for Colton...that the OI would present itself in a minor way in his body and lifetime as it has for me. Yes I have broken several bones but overall have been able to live a pretty normal life but there are relatives I have that have the same type of OI that I have who have had A LOT more issues related to the OI and have not had such a mild case of it. To my understanding we will not know how it will affect him right away...
Also as many of you know I fell almost two months ago and hurt my left arm pretty badly. Well also last week, we found out I have to undergo outpatient surgery this Tuesday Dec. 20th. I found out recently from an MRI I have torn my tendon/tricep muscle area. I have broken this arm several times in the past, so hurting it again is just a frustrating thing for me having to deal with another OI related issue. So you could just be praying that my surgery goes well on Tuesday. :) WHAT a week huh?
This year has been an emotional one for our family...from the tornado, having to move out of our house for 6 weeks, falling/surgery, Colton's diagnosis. Really hoping 2012 comes with a lot less emotions :)
Thanks for living life with us!
Subscribe to:
Posts (Atom)