I subscribe to this blog. This lady has a terminally ill daughter...and she posted this awhile back about being "normal".
Our lives are not “normal.” Letting go of that normal has been very, very hard. I often wish that life was easier. I wish that my two little girls were running around, laughing and playing together. I wish that Lauren and Carmen would grow up together.
For some reason, God chose us for a not-so-normal life. We took the first step by adopting internationally but we had no idea that road would lead us to a terminally ill child. Letting go of my own desire for a normal life has been a painful process and one I continue to struggle with.
I keep going back to Hebrews 11, the faith chapter. Normal is not spending a year in an Ark. Talk about life on hold! Normal is not waiting until you are 90 and 100 years old for a child. Most of us don’t like waiting one day for what we want. Normal is not hiding your child for 3 months from a king intent on killing all baby boys. Normal is not giving that baby boy to the very people enslaving and mistreating your people. I doubt Moses’ mom envisioned this life for her son.
I can’t think of anyone in the Bible who lived a normal life. And yet their lives are awe-inspiring. So perhaps normal is over-rated. I do know that this past year with Carmen has changed us forever. I don’t think we will ever be normal again and I am not sure we would want to be. I hope and pray that for the rest of our lives, we let go of normal. And that we are willing to take the big “risks” that are both painful and rewarding.
I have gone back and reread this post several times over the last several months. Even though if my son is born with OI he will not be terminally ill we may have to give up what some call "normal" depending on the severity of the genetic disorder. I know all of this is the "what if's" of my life right now and I have no clue what the future holds for us. But if they become a reality at some point whether with this baby or if we choose to have more children later on, I hope and pray to our Heavenly Father that I am able to give up what some call "normal" and embrace and enjoy everything God will have to offer us through that journey.